It’s not like me. I am quite laid back, take things in my stride, try to stay positive and if something doesn’t work- well a shrug of the shoulders and a new approach thought of. I can fight when I need to for my kids but it’s never at individuals, I’m talking bodies like the DWP or LEA.
After the EHC meeting and realising Oliver didn’t fit the school or the dual school placement we did a lot of talking. The LEA are avoiding me, I realised how big the gap is growing between him and his peers, how isolated he’s becoming and I can’t fix it immediately. Added in lack of sleep, end of year disruption at school, assemblies to attend, paperwork to go through as well as everything else I was feeling really frazzled. Olivers class were putting on a performance and one morning the teacher approached me to discuss his role in the play. “He might not sit through it all so he will be near the door in case he has to leave. We don’t want him running around when bored and not letting the kids shine. They’ve worked so hard”.
I snapped. I’m not proud of it but I snapped. “When does my sons get a chance to shine? Every day is normal day why can’t he have 10 minutes to shine? You’ll all breathe a sigh of relief when he’s gone. You’ll be saying thank god that fecking child is gone” said in a very ranty voice and then I cried. I walked off and I don’t know what he did then. Usually I’d have said “can we discuss this in private please so we can find a solution to keep everyone happy” but I snapped. You see he never got to the carol concert at church, or the Easter service or the Mother’s Day assembly, or the music concert. This felt like another exclusion.
A week later and school sends out a text about the disco. What disco? We didn’t get a letter. I went into school and asked to speak to someone about discrimination. I think I’m making enemies everywhere 🙁. It’s up to him if he wants to go to the disco. If he goes and stays 1 minute then that’s his choice. He can decide some things for himself. I got him a ticket and said I’d stay to support him. He loved it. Stayed til the end and wouldn’t leave til others had started going home- he didn’t want to miss a second. He span round, bought glow sticks, lay on the floor, jumped around and chased the lights. He was so happy.
I’ve spoken to the senco and his teacher about how Oliver is a person with likes and dislikes and can express them in his way. I’ve explained that although his progress might not be giant strides but tiny steps, to him and us they are just as valid and praiseworthy. Don’t make choices for him based on his behaviour from before. He is growing and changing every day, like any other kid. Try him out with things before discounting them. He is autistic, he’s a little boy. He is both at the same time. Don’t put him in a box. Don’t assume he can’t! He might not want to, which is a different story, but if he doesn’t try things then how do we know what he can do. How can he learn what he likes and doesn’t. All he needs is equal opportunity.
They did a dress rehearsal for the rest of the school. Popples said he was amazing, he danced and sang. At the parent performance he played with blu tac and slid off the bench. He sat through it all both times though. He was with his class and he didn’t spoil it, he just did his thing and joined in when he felt he could. Of course I wouldn’t want him to ruin it for the other kids, I made sure I sat somewhere where I could intervene if necessary without causing much intrusion. I’m under no illusion it can be difficult for him in that situation. I think things just built up. It felt like he was being marginalised. If I am expected to think of 30 other kids then why is no one expected to think about the feelings of 1?
I have apologised to the teacher. I shouldn’t have lost it. I shouldn’t have swore (we weren’t in the classroom). Being honest his teacher this year has put so much effort in with Olly. Finding ways he can access the curriculum on his level, doing extra work on the resources he needs, actually spending time teaching him. I think he was clumsy the way he spoke to me but I think I was wrong to rant at him. It’s not like me at all. We have a week left at school and I suspect he will now avoid me. I’ve apologised, I’ve acknowledged the work he puts in, I’ve thanked him for his honesty at the ehc meeting but I suspect I’ve broken our working relationship. Popples has a year til she’s in that class, so he has a year before he has to deal with me again.
At the end of the day I’m only human. And I’m the only one who will fight so hard for my kids- all of my kids. They’re all special to me.